We feel like we’ve been on this CRAZY roller coaster. We’re totally fine one day and the next one of us will be a mess. We found out about our baby’s heart condition almost a month ago and are starting to get a handle on it. We’re expecting the best and preparing for the worst.
We had another Ultrasound today. The fluid is gone from around her heart which is a great thing. The ultrasounds at Maternal Fetal Medicine are mostly to check on her growth, other organs and fluids. Everything but her heart looks perfect. We’ve been told that we should be able to go to full term.
The cardiologist at Primary Children’s focuses on her heart and then reports to the OB. I’m having a hard time finding a lot of information on people who’s kids have had Tricuspid Atresia and hypoplastic (underdeveloped) Right heart syndrome. Having a underdeveloped Left Ventricle is much more common. The cardiologist has told us that is we have to pick one that’s underdeveloped it’s better if it’s the right.
I’m hoping that, by posting here, we can get into to families that need it. I’ll try to post our journey so that others know what to expect. I know that every case is so different but it’s nice to hear someone’s experience.