Morning: I gotta be honest. This is no fun to write right now. Yesterday was a super tough day, and it looks like we are in for another one.
At 3:00AM, Gracie started throwing up which obviously isn’t a good thing, especially with a ventilator. They have been watching her and she continues to throw up.
They have stopped her feeding and working to figure it all out. They are thinking it is withdrawal from her medications.
They did a stomach x-ray and ultrasound and we are waiting to hear the results.
It’s so hard to see one thing lead to another. It feels like we are just making progress when something else happens.
One problem’s solution is another problems cause.
I try to be strong but it only lasts for so long before I just can’t take it. I get on edge, and just break down. It’s a surreal feeling and everything outside just keeps moving forward. It’s almost like time has paused and each day blends into the next. We just keep getting up each day hoping for the best, then moving forward and doing what we can, although it doesn’t feel like much.
I’m hoping that we can make some good progress today, but honestly feeling discouraged. We are confident in the team hear and couldn’t be in a better place to go through this, it’s just a rough patch that I hope doesn’t last too long.
I keep envisioning the day we get to take Gracie home, hold her and watch her grow. That’s what keeps me going.
#gogracie, you can do it.
Night: Another long day. Not much change. Still battling a fever and lots of drainage from her chest.
I’ll update again tomorrow.
5/10/2016